My Inspiration in the realest form

The woman who inspired me to start blogging and writing about my medical journey was V. We found eachother through a post on You Tube regarding IVIG therapy's and it's importance. Come to find out she suffers from Paraneoplastic Pemphigus and the lung condition that I'm plagued with for the rest of my life if I dont get a successfull lung transplant. Her level of PNP was so severe that she actually went blind and again regained her vision some time later. It would be like me falling down and getting my knee scraped compared to the tribulations this woman has gone through to fight for her life. Even though my PNP has definitely got the best of me at times and my life expectancy was hanging by a thread I made it through.

As months go by and the more stories we share with one another and our health the more important I know it is that I must go see her. I will not feel complete in anything I do until I meet this woman. She has a beautiful family and knows EXACTLY what I'm talking about when I say how I feel.

How the thought of stairs makes me want to vomit. How sitting up for an hour in the morning coughing up junk out of my lungs is the norm before even drinking my morning coffee.  How having to pick and choose what to eat and when depending on your PNP flaring up and how it might turn your mouth into hamburger help-me! How having little to no energy to do the most simple things in life makes us feel like we are 90 years old. How getting up and taking a shower and getting ourselves presentable for the day is more like the equivalent of running a 5k.

I know V feels me on all of these things. I have never met her, but I know her. I love her, and I can't wait to meet her and her family. She lives in San Fransisco where I have family that is willing to let me stay if I need to, so I'm getting excited to see her in the very near future.

The reason V is on my mind so much today is because her cancer has come back. She is going through chemotherapy and it just sucks. As if that is not enough she has to deal with our dreaded lung disease which rips every bit of happiness and energy you did have out of your day when its "acting up!" Its just so unfortunate to see her struggle when I wish I could be there to help her when I'm strong and vice versa.
This month her sweet wife Dani and son Parker took her on a trip to see Scotland, London, and Paris to name a few. She wrote me the other day and said that she was in a wheelchair wheeling around seeing the sites and that it was exhausting but spectacular!

V put it simply in her last email to me that she sent from Angel Station in London. Our diseases might take away some things but NOT everything! She couldn't have said it any better. Please remember every day is a blessing. I have certainly been in a funk lately and need to get my self back to my "better more inspirational" frame of mind. I would not be human though if I said every day was sunny without a chance of showers.

Thank you for reading! God Bless all of you who pray for me, V, and anyone else who struggles to hang on for dear life!

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If you are ever interested in following V's blog she is an amazing writer and story teller. Her website is http://www.alotoflife.com/ you can access her blog at the very top uner V'S VERSION BLOG.