Well, its only been 5 months since I have last posted a blog. I think that's far too long :) So many good things have hapend since this summer that I don't even think I have enough room to type it all in detail so I will briefly list them.
* I'm ENGAGED :) (Will def. post proposal story and pics next)
* Emily is now 4, and my mother and I took her to Disneyland for her birthday
* I moved to Central Park with Ryan aka: the love of my life
* My health has stabilized, I feel better than I have in a couple years , I have increased my oxygen intake in my lungs by 1/2 liter :) HUGE SUCCESS.
So there you have it..... all great things.
They started me on a new medication which has made it possible for me to live and enjoy life again. I can grocery shop with Emily, clean my house, and do other fun things WITH energy and not feeling like I'm ready to go to bed at 11am after just waking up for my day at 7am. Because of this my o2 level has increased which makes it possible for me to just wear my oxygen when I'm working out. SOOOOOOOOO Happy about that one! By no means are my lungs good or will their ever be, all this means is that I am able to hold off on transplant until I start to show signs of shortness of breath to the extreme at which it was. They will check my progress with PFT'S (Pulmonary Function Tests) every 3 months and determine where I am at. I completed the whole transplant workup process which took 3 months and a TON of appointments. They said that I would not have to go through the entire process again but things like blood work and pft's would have to be re done when I'm ready to be listed for transplant.
Overall , I enjoy life more now than ever. I'm so thankful for my Christmas wish come true. I just wanted to be able to breath. God is good!
Lisa,
ReplyDeleteI am so glad things are going well for you. You are a great girl, and deserve the world. I am so happy to hear about your health stabilizing! I am grateful to Ryan for making you a happy woman :)
hello, my name is Lisa, I don't have the virus, but I have been in and out of hospitals more times in the last 4 years than I can remember. I had thyroid cancer, from that came 100 other problems that I can't seem to get rid of. Anyway, I just want you to know that I'm a fighter and it's nice to know you are too. Seems like in just a few months your life turned inside out. I'm glad you are doing better and that you are able to do things with your little girl. I look forward to reading your blogs, please post pictures soon. Congratulations on your engagement, I wish you both all the best. ^;^
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